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About Hammersmith Hospital
Kidney Patients' Association (HHKPA)
 
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Contents

   

Welcome to the Hammersmith Hospital Kidney Patients' Association (HHKPA) website. We are a charity run by kidney patients, their families, friends and carers, and the staff of the Hammersmith Hospital Renal Unit.

HHKPA was set up in 1978 and is run by people on dialysis, transplant recipients, carers and renal staff. All patients under the care of Hammersmith Hospital are automatically members of the association and receive benefits such as the National Kidney Federation quarterly magazine 'Kidney Life'.
HHKPA aims to:

  • Provide information and support to people with renal failure, their families and carers.
  • Improve medical facilities
  • Support national renal organisations
  • Raise public awareness about renal issues

Why our work is important
Hammersmith Hospital currently treats 800 people with kidney failure.

Kidney failure can be treated very effectively but it can have a great impact on a person's lifestyle and some people may need support if, for example, their careers have been affected.

The number of people with kidney failure at Hammersmith Hospital is projected to rise by 15% per annum over the next 5 years. This, together with the national increasing demand for renal services, means that HHKPA considers raising awareness of renal issues a high priority. We aim to do this both at a local and national level and are always looking for help.

What we do

  • Provide information through our tri-annual newsletter to all members
  • Subsidise the quarterly National Kidney Federation's (NKF) 'Kidney Life' for all members
  • Purchase medical and non-medical equipment for the renal unit
  • Provide welfare grants to individual members
  • Work closely with hospital staff and management to improve hospital conditions for people on dialysis and with transplants
  • Promote the NHS Organ Donor Register and Donor Card
  • Support the British Transplant Games
  • Participate at the National Kidney Federation's annual conference

Examples of recent work we have been involved in:
Raising awareness through radio interviews and information displays to West London's Asian community; distribution of donor cards at local football matches

Representing patient interests in the recent reorganisation of renal services in West London

Purchasing equipment including: individual television and headsets for satellite dialysis units; and furniture and information boards for the transplant outpatients' waiting room

How you can help

  • Through volunteering
    Become an occasional volunteer. We need volunteers to help with mailing out the newsletter and help with our events.
  • By fundraising
    Organise your own sponsored event for HHKPA. Events can be as large or small as you want and raise a little or lots of money!
  • Becoming a committee member
    The committee meets once every four to eight weeks. Come and meet us. We always need new members.

The HHKPA Committee Officers

 

 

Dr. Elaine J Clutterbuck MBChB,FRCP, PhD
President

Elaine is a renal consultant at Hammersmith Hospital.

     
 

Don Taylor
Chairperson

40 years in professional Youth Work. Last post before early retirement was Director of a Youth Charity.
Former International athlete. Ranked fourth in the world at 10,000 metres in 1963
Now Chair of the London Wheelchair Marathon
Polycystic Kidneys diagnosed in 1981. After a period on Peritoneal Dialysis received a Transplant in 1996
Participates in the Transplant Games. Would like to see more KPA members who have a transplant taking part in this annual event.

       
 

Nimrit Foody
Vice Chairperson
I am 33, was on CAPD for 2 years; that was OK and I managed to go on 3 holidays including the USA in that time.
I got a transplant from my husband in Aug 2001 and so far so good.

   

Sharman Maxwell
Vice Chairperson

My name is Sharman Maxwell, I had a transplant in April 2003 due to Polycystic Kidney Disease. I have two sons, one who also has P.C.K.D. I joined the Kidney Patients' Association to give something back for all the help I had received from the doctors and staff at Hammersmith Hospital.

           
  Eileen Parker
Treasurer
I have been a patient at both Charing Cross and Hammersmith Hospitals and have had renal disease since the mid 1970s. I spent more than 3 years on dialysis before receiving a successful kidney transplant in April 1997.
(Former chairperson of HHKPA)
 

 
           
 

 

           
For more information on HHKPA or to find out how you can help, please contact:
Don Taylor (Chairperson)   Eileen Parker (Treasurer)
Tel: 01895 445198   Tel: 020 8755 1882
Email: DandS.Taylor@talk21.com   Email: EFParker1@aol.com

Nimrit Foody (Vice Chair)

 

Sharman Maxwell (Vice Chair)

Tel: 01895 273187

 

Tel: 020 8797 1983

Email: nim@magidesign.co.uk  

Email: sharman.max@hotmail.co.uk



 
 
 

If you would like to support the HHKPA, either by joining the committee, organising a fundraising event or by making a donation, PLEASE contact us.

Everyone is also welcome to attend any of the committee meetings.

YOUR CONTRIBUTION, HOWEVER SMALL, IS GREATLY VALUED.

Please send all contributions to the Treasurer:

Eileen Parker
11 Barneby Close
Twickenham
TW2 6RR

 
   
   
   
   
   
   
   
   
       
 
THE COMMITTEE
 

President:
Dr. Elaine Clutterbuck

Chairperson:
Don Taylor

Vice Chairpersons:
Nimrit Foody
Sharman Maxwell

Treasurer:
Eileen Parker

Committee members:
Patrick Boyle
John Bray
Mary Brazier
Tom Costello
Jacquie Fraser
John Hall
Liz Lightstone
Bhupinder Manz
Louisa O’Leary
Margaret O’Neill
Prof. Charles Pusey
Sean Ryan
Carol Toal
Jan Waters
Gail Woolsey

 
     
 
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
     
 
HHKPA is part of the National Kidney Federation - the only national renal organisation which is run by kidney patients and their carers.  

 

 

   
   
   
       
     
     
     
     
     
       
 
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