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Welcome
to the Hammersmith Hospital Kidney Patients' Association (HHKPA) website.
We are a charity run by kidney patients, their families, friends and carers,
and the staff of the Hammersmith Hospital Renal Unit.
HHKPA
was set up in 1978 and is run by people on dialysis, transplant recipients,
carers and renal staff. All patients under the care of Hammersmith Hospital
are automatically members of the association and receive benefits such
as the National Kidney Federation quarterly magazine 'Kidney Life'.
HHKPA aims to:
- Provide
information and support to people with renal failure, their families
and carers.
- Improve
medical facilities
- Support
national renal organisations
- Raise
public awareness about renal issues
Why
our work is important
Hammersmith Hospital currently treats 800 people with kidney failure.
Kidney failure
can be treated very effectively but it can have a great impact on a person's
lifestyle and some people may need support if, for example, their careers
have been affected.
The
number of people with kidney failure at Hammersmith Hospital is projected
to rise by 15% per annum over the next 5 years. This, together with the
national increasing demand for renal services, means that HHKPA considers
raising awareness of renal issues a high priority. We aim to do this both
at a local and national level and are always looking for help.
What
we do
- Provide
information through our tri-annual newsletter to all members
- Subsidise
the quarterly National Kidney Federation's (NKF) 'Kidney Life'
for all members
- Purchase
medical and non-medical equipment for the renal unit
- Provide
welfare grants to individual members
- Work closely
with hospital staff and management to improve hospital conditions for
people on dialysis and with transplants
- Promote
the NHS Organ Donor Register and Donor Card
- Support
the British Transplant Games
- Participate
at the National Kidney Federation's annual conference
Examples
of recent work we have been involved in:
Raising awareness through radio interviews and information displays to
West London's Asian community; distribution of donor cards at local football
matches
Representing
patient interests in the recent reorganisation of renal services in West
London
Purchasing
equipment including: individual television and headsets for satellite
dialysis units; and furniture and information boards for the transplant
outpatients' waiting room
How
you can help
- Through
volunteering
Become an occasional volunteer. We need volunteers to help with mailing
out the newsletter and help with our events.
- By
fundraising
Organise your own sponsored event for HHKPA. Events can be as large
or small as you want and raise a little or lots of money!
- Becoming
a committee member
The committee meets once every four to eight weeks. Come and meet us.
We always need new members.
| The
HHKPA Committee Officers |
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Dr.
Elaine J Clutterbuck MBChB,FRCP, PhD
President
Elaine
is a renal consultant at Hammersmith Hospital. |
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Don
Taylor
Chairperson
40 years in professional Youth Work. Last post before early retirement
was Director of a Youth Charity.
Former International athlete. Ranked fourth in the world at 10,000
metres in 1963
Now Chair of the London Wheelchair Marathon
Polycystic Kidneys diagnosed in 1981. After a period on Peritoneal
Dialysis received a Transplant in 1996
Participates in the Transplant Games. Would like to see more KPA
members who have a transplant taking part in this annual event.
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Nimrit
Foody
Vice
Chairperson
I
am 33, was on CAPD
for 2 years; that was OK and I managed to go on 3 holidays including
the USA in that time.
I got a transplant from my husband in Aug 2001 and so far so good. |
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Sharman
Maxwell
Vice
Chairperson
My name is Sharman Maxwell, I had a transplant in April 2003 due to Polycystic Kidney Disease.
I have two sons, one who also has P.C.K.D.
I joined the Kidney Patients' Association to give something back for all the help I had received from the doctors and staff at Hammersmith Hospital.
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Eileen
Parker
Treasurer
I
have
been a patient at both Charing Cross and Hammersmith Hospitals and
have had renal disease since the mid 1970s. I spent more than 3 years
on dialysis before receiving a successful kidney transplant in April
1997.
(Former chairperson of HHKPA) |
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If
you would like to support the HHKPA, either by joining the committee,
organising a fundraising event or by making a donation, PLEASE
contact us.
Everyone
is also welcome to attend any of the committee meetings.
YOUR
CONTRIBUTION, HOWEVER SMALL, IS GREATLY VALUED.
Please
send all contributions to the Treasurer:
Eileen
Parker
11 Barneby Close
Twickenham
TW2 6RR
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